Not too long after I posted that update, one of our oncologists came by with results from pathology.
When Jackson's biopsy was done in May, only a small portion of the tumor was examined. Now, with it all out, they can check out the whole thing.
Over the past few days the pathologists have been working on it. Our oncologists and surgeons have been checking with the pathologists often because they were all anxious to know more about Jackson's tumor.
The original diagnosis in May was Hemangiopericytoma. A very rare cancer, only 12 cases in 35 years have been reported to St. Jude's.
Basically, they are now not sure that it is Hemangiopericytoma, but they aren't sure what it is.
So, it is being sent to Boston. A pathologist associated with Harvard, Boston Children's and the Dana-Farber Cancer Institue will be working on Jackson's case.
At this point, all they can really tell us is that it looks more aggressive than originally thought.
Some good news is that right now the margins of healthy tissue look good. That means that the surgeon was able to get some healthy tissue along with the tumor, lessening the chance that any cancerous cells were left behind.
To be certain that it is all gone, more chemo and radiation are most likely in our future.
The oncologists feel really good about the fact that we went ahead with the surgery...and we do too. I really don't know how to process this, because it sounds bad...but it's out of his body.
So right now we wait to see what comes back from Boston. And hope and pray and believe that everything will be okay.
In nothing be anxious, but in everything, by prayer and petition with thanksgiving, let your requests be made known to God.
Philippians 4:6
Keeping Jackson and your family in my prayers.
ReplyDeleteBlessings,
xoRobyn
I can only imagine the swirl of emotions you are right now. Hang on to hope!
ReplyDeleteI was talking to a very dear friend the other day {she is like a second mom to me} and her son {who is now older than me!} was diagnosed with a very rare cancer when he was 11 months old...only 7 cases in the US as the time and had to do all the chemo and radiation. This was in the early 70's and they told her if he survived he would never have children. He now is healthy, happy, and the proud father to three beautiful babies!
Jackson's future is very bright! I believe all the cancer has been removed and even though some of the news is scary he is strong and is going to finish slaying this monster. XXOO
Prayers continue for Jackson's recovery from surgery! Prayers for the pathology results to come back quickly from Boston and for wisdom for all the Drs to determine the best plan for Jackson to be forever cancer free :)
ReplyDeletePeace of our Lord be with you,
I love you all.
ReplyDeletePS I'm re-visiting to let you know that your dear friend Michelle nominated you and Jackson for a giveaway at my site.
ReplyDeleteKeep faith.
xoRobyn